Gene Therapy Frees Patient from 29 Years of Haemophilia B Treatment
- SSCTR Exco
- Jun 17
- 1 min read
Published on Spencer Knight via LinkedIn
Elliott Collins, 34, lived with haemophilia B for nearly three decades, relying on frequent injections to prevent life-threatening bleeds. After receiving Hemgenix, a gene therapy that uses AAV to deliver the clotting factor IX gene directly into the liver, Elliott now considers himself cured. He’s no longer tied to a treatment routine and is exploring life with renewed freedom.
The NHS is also making gene therapy more accessible in the UK through a performance-based agreement with CSL Behring. The NHS only pays if the therapy delivers sustained results, making it a model for value-based innovation.
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