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ARM Urges Congress to Pass Two Bills Supporting Pediatric Rare Disease Therapies

Published on Alliance for Regenerative Medicine


A large coalition of rare disease organizations is pushing Congress to advance two bipartisan bills that would expand pediatric access to specialized care and sustain incentives for developing rare disease treatments, including CGTs. The proposals focus on strengthening early-access pathways and improving out-of-state provider credentialing for children with complex conditions.



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